It's official - we're moving forward with the first ever ASPS Day of Learning. Come and help us take a giant step forward against this disease at this free event, which will run approximately 8 am - 4 pm on Friday, September 23, 2016. If you'd like to come, please email Krystin Altieri at k.altieri@med.miami.edu to … Continue reading Save the Date: Alveolar Soft Part Sarcoma Research Workshop / Patient Day of Learning
Patients
paying it forward…
Do you guys remember ever seeing that movie, Pay it Forward? It has the scary kid from The Sixth Sense in it - along with Kevin Spacey and Helen Hunt. I am dating myself because I realized that both of those movies are now from the year 2000... ok... I'm old. Regardless the concept is … Continue reading paying it forward…
Updates on desmoid tumors
A few weeks ago I met a patient who came to see me for treatment recommendations for a desmoid tumor in her hip. She is a healthy, 40 year old female who noticed that something was wrong after slowly developing more pain and discomfort during hiking and other physical activity a couple years ago. She had seen … Continue reading Updates on desmoid tumors
Clinical Trials: What you should know to make an informed choice about your therapy.
This is a guinea pig. Greetings readers, My 282 page grant finally went in Monday – and so now I finally have some spare writing quota to return to the blog! Today’s topic – everything you ever needed to know about clinical trials. The goal is to clear up some misconceptions, and also to help … Continue reading Clinical Trials: What you should know to make an informed choice about your therapy.
the roller coaster of uncertainty.
borrowed from Random Happy Soul I googled "uncertainty" tonight to try to find a picture for this blog topic, and there were literally thousands of images, quotes, and horrible clip-arts that pointed out what's obvious to most of us - in the words of Forrest Gump, "Life is like a box of chocolates... you never know … Continue reading the roller coaster of uncertainty.