Sarcoma Awareness Day with the Miami Marlins, July 2015 Today marks the beginning of sarcoma awareness month - in addition to donning all your yellow attire, you can kick it off by signing this petition to make it official by the White House - https://petitions.whitehouse.gov/petition/designate-july-sarcoma-awareness-month (header credit - ericddavisfoundation.org)
It's official - we're moving forward with the first ever ASPS Day of Learning. Come and help us take a giant step forward against this disease at this free event, which will run approximately 8 am - 4 pm on Friday, September 23, 2016. If you'd like to come, please email Krystin Altieri at firstname.lastname@example.org to … Continue reading Save the Date: Alveolar Soft Part Sarcoma Research Workshop / Patient Day of Learning
Greetings from Chicago, where once again, immunotherapy remains the highlight of most ASCO presentations. This year was particularly exciting, as we finally got to see the preliminary results of the first clinical trials of checkpoint inhibitors for sarcomas. So, I will update all of you on the most recent data, explain how we still have more … Continue reading Updates from ASCO 2016: Immunotherapy for sarcoma shows a signal!
Last week, after one year and about 4 months of work, I consented my first patient for my clinical trial of combination axitinib and pembrolizumab for alveolar soft part sarcoma (ASPS) and other soft tissue sarcomas. Since this trial hit clinical trials.gov, I've had more patients come out of the woodwork with ASPS then I could have … Continue reading The one that really has to go… ASPS.
Do you guys remember ever seeing that movie, Pay it Forward? It has the scary kid from The Sixth Sense in it - along with Kevin Spacey and Helen Hunt. I am dating myself because I realized that both of those movies are now from the year 2000... ok... I'm old. Regardless the concept is … Continue reading paying it forward…
A few weeks ago I met a patient who came to see me for treatment recommendations for a desmoid tumor in her hip. She is a healthy, 40 year old female who noticed that something was wrong after slowly developing more pain and discomfort during hiking and other physical activity a couple years ago. She had seen … Continue reading Updates on desmoid tumors
This is a guinea pig. Greetings readers, My 282 page grant finally went in Monday – and so now I finally have some spare writing quota to return to the blog! Today’s topic – everything you ever needed to know about clinical trials. The goal is to clear up some misconceptions, and also to help … Continue reading Clinical Trials: What you should know to make an informed choice about your therapy.
Apologies dear readers for my lack of blog activity - it's grant season and I've been hard at work at putting together a new clinical trial... but that means the topics have piled up so new posts will be coming soon! First and foremost I wanted to make sure that everyone's aware of our upcoming … Continue reading Sarcoma Patient Education Conference in Miami
Borrowed from Chakma J. Genomic Variation: The Search for our Past and Our Future. Journal of Young Investigators. Vol 16, 2009. The White House Initiative The concept of personalized medicine has received a tremendous amount of media attention as of late, and in this post I thought I would try to outline the various technologies, concepts, … Continue reading have we really reached the era of personalized medicine?
In honor of the 4th of July holiday, I thought I'd squeeze in one more post - let's talk about IMMUNOTHERAPY, which has created fireworks of its own in the cancer treatment world! In order to talk about the exciting clinical trials and ideas that are out there for sarcoma patients, we need to first … Continue reading Immunotherapy 101